NORD has launched the Rare Caregiver Respite Program, a first-of-its-kind program aimed at providing caregivers of rare disease patients a much-needed respite. Caring for a loved one with a rare disease demands significant time, attention, patience and dedication. NORD’s Rare Caregiver Respite Program is designed to give back to caregivers—the parent, spouse, family member, or significant other—of a child or adult living with a rare disorder, and provides financial assistance to enable the caregiver a well-deserved break.
“At NORD, we are proud to have provided a variety of services and assistance to patients over the years,” said Jill Pollander, director of patient services for NORD. “The new Rare Caregiver Respite Program allows us to acknowledge the hard work that families and significant others do so tirelessly every day by enabling them some time away while ensuring their loved one is well cared for. It’s a thank you we are thrilled to be able to give.”
Through the program, NORD will provide financial assistance to eligible caregivers covering up to $500 annually so that a respite caregiver may be secured to care for a loved one. Potential applicants can reach out to NORD to ascertain if they meet eligibility requirements. The grant may be dispersed throughout a calendar year or be used in a single award. Examples of what the NORD Rare Caregiver Respite Care Program financial assistance may cover include:
- Registered Nurse (RN) care
- Licensed Practical Nurse (LPN) care
- Certified Nursing Assistant (CNA) / Nursing Assistant
- Home Health Aide (HHA)
The fund continues to accept additional donations to ensure this first-of-its-kind program is sustained for years to come. For more information and instructions on how to apply, visit rarediseases.org