AE Alliance Blog

The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.

Lukapalooza Costume Bash to Benefit AEA

The inaugural Lukapalooza Costume Bash to benefit the AE Alliance was a great success and is in the books! Luke Shriver, an AE survivor, and his family and friends had an amazing time while sharing awareness and raising funds for the AE Alliance.  The spirit of community, courage, and the love of good music brought a …

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Dr. Josep Dalmau Receives Prestigious Award for Research in Autoimmune Brain Disease

Pioneer in the field of autoimmune encephalitis, Josep Dalmau was recently honored with the prestigious Rey Jaime I Award for medical research in a ceremony in Barcelona, Spain. His group’s achievements are in the area of autoimmune disorders that affect the brain, including the recognition of several new syndromes in autoimmune encephalitis. They are credited …

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Encephalitis Experts to Gather in London

Leading experts from around the world will descend on London for the 2017 Encephalitis Conference on December 4, sponsored by the UK-based Encephalitis Society.  The Autoimmune Encephalitis Alliance is sponsoring lunch for attendees. Professionals with backgrounds ranging from etiology and pathogenesis through to diagnosis, treatment, recovery and rehabilitation, will be on hand to share their latest …

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University of Indianapolis hosts soccer event honoring autoimmune encephalitis survivor

Rory Halbert was recognized at a University of Indianapolis women’s soccer game recently as part of TeamIMPACT, a program which allows children with serious illnesses to become an honorary member of a college team. Rory was recognized at halftime, as she is graduating from the program. The team wore green to show support for Rory’s …

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Unexpected Career Interruption – You Can Come Back Stronger from Autoimmune Encephalitis

Many thanks to Will Earnhart for sharing his inspiring story reprinted below, which first appeared in the September 2017 Alaska Bar Association quarterly newspaper. As attorneys, many of us have type “A” personalities; always striving to be successful in our careers.  We never take a step back for fear of stopping the momentum.  Almost all …

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Neurology conference includes special meeting on autoimmune neurology

Well-known pioneer in the field of autoimmune encephalitis, Josep Dalmau, reported that interest in the emerging field of autoimmune neurology has increased enough to warrant its first focused section meeting at the annual American Academy of Neurology conference this year. He stated that ongoing studies are providing new information on the pathologic mechanisms of action …

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Blood-brain barrier studies may lead to breakthrough in AE

We are encouraged that researchers at Columbia University Medical Center in NY, NY recently published a review article, bringing together many facets of research on how antibodies and other types of immune cells are able to cross the blood-brain barrier and gain access to the brain, causing autoimmune encephalitis. They stated that these routes of …

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Spanish language translation of earlier Sept. 13, post –HLN, CNN y NY Post producen historias sobre tres damas con encefalitis autoinmune

Tenga en cuenta: usamos Google translate para la traducción de este blog, originalmente en el sitio web de la Alianza de Encefalitis Autoinmune. Nos disculpamos si hay algún error. Los espectadores de todo el país vieron el domingo, 27 de agosto, cuando tres damas (sobrevivientes) y sus familias compartieron historias de sus tumultuosas experiencias con …

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AEA co-sponsors physician education events in Los Angeles, CA

AEA was honored to co-host two educational events in June, featuring one of the world’s foremost experts on autoimmune encephalitis, Dr. Sean Pittock. The events, including a dinner presentation and Grand Rounds, where held on June 12 and 13, in Los Angeles, California, and were co-sponsored by AEA, the Keck School of Medicine of University …

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HLN, CNN, and NY Post produce stories on three ladies with autoimmune encephalitis

Viewers nationwide watched on Sunday, August 27, as three ladies (survivors!) and their families shared stories of their tumultuous experiences with AE on the new HLN series “Something’s Killing Me.”  On Monday,  August 28, CNN followed the program with a feature story on  the disease . The rapid descent into illness that often occurs and the amazing …

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