The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.
Prior to contracting AE, I was a 26-year old male working in the pharmaceutical industry. I had the opportunity to travel to many different places across the world and lived a busy life. I was also a family man sharing life with my 2-year old daughter and better half. Late last year I contracted AE …
The AE Alliance hosted the annual Florence Forth Race on March 3, 2018, drawing over 1100 runners and walkers. Some were AE survivors and their families from all over the nation and Canada. Cold weather did not dampen the spirits of participants as they ran, walked and cheered each other on for this fundraiser that …
Over the past 7 years, I’ve been battling, both Autoimmune Encephalitis and Epilepsy. I’m very grateful to have received comprehensive care, including two brain surgeries, from an amazing team of neurologists at UCSF. I’m very hopeful that what my case has enabled my doctors to discover will ultimately help others, and it’s my goal to …
We are pleased to welcome aboard Chris Knuth and Dave Shevlin, who have joined forces with the AE Alliance through the Non-Profit Board Consultants program at UNC Kenan-Flagler Business School. Both Chris and Dave are first year MBA students and are excited to bring their business skills and education to the table to assist the …
The importance of awareness of AE among child psychiatrists has been emphasized in a recent publication by Mooneyham, Gallentine and VanMater of the Duke University Children’s Hospital Autoimmune Brain Disease Program. They note that the nature of early symptoms may lead children to be evaluated first by a psychiatrist. These may include the acute or …
The Autoimmune Encephalitis Alliance is delighted to announce the hiring of Elisabeth Wharton as Interim Executive Director where she will focus on the creation and implementation of policies and procedures essential to the next steps we hope to take as an organization. “The Autoimmune Encephalitis Alliance already has a foundation of relationships with key entities …
Come join your AE community at the annual Florence Forth Road Race and AE Family Lunch on March 3, 2018 in Durham, NC. It’s a chance for AE survivors to join together and share stories. The center piece of the weekend is a walk/run on Saturday morning called Florence Forth. Then after the walk/run is …
Autoimmune encephalitis experts at the Mayo Clinic published the first population-based study of AE in an effort to determine the incidence of the disease. The researchers found that in the last decade approximately 1 in every 100,000 people develop AE each year. This translates into approximately 4,000 new AE cases in the US annually and …
Researchers and clinical professionals interested in the study of encephalitis descended on London on Monday, December 4, for the UK-based Encephalitis Society annual conference . More than 120 people from the UK, USA, Denmark the Netherlands and Indonesia joined for a day of presentations and networking on topics surrounding encephalitis. The conference ended with the …
You are Invited Live Webinar on Autoimmune Neurology January 18, 2018 2:00 pm MST The Rocky Mountain MS Center is hosting a public webinar presented by Dr. Amanda Piquet on The Emerging and Evolving Field of Neuroimmunology. This webinar is free and open to all. Dr. Piquet will cover autoimmune encephalitis, autoimmune epilepsy and Stiff-person …
