Over 150 patients and family members affected by autoimmune encephalitis gathered in Durham, NC, for a luncheon on March 5. Known simply as the “Family Lunch” the event is a chance to meet others affected by autoimmune encephalitis, laugh, celebrate, remember those lost to the disease, and share stories both privately and publicly. Having grown in […]
You don’t have to be a runner or walker to support those affected by autoimmune encephalitis on March 4, 2017, but if you are, come share your spirit, laughter, and competitive spirit with 1600 soon-to-be friends at Florence Forth. There is also a wonderful Family Lunch for patients and their immediate families at noon (doors […]
Roughly 70 researchers, nurses, neuropsychologists, neurologists, residents, fellows, patient advocates, patients, and families attended a “Dinner and Discussion on the Future of Autoimmune Neurology” on the evening of 4/27/17, held at the Richard Simches Research Center at Massachusetts General Hospital (MGH). Organized by Dr. Jenny Linnoila, a neurologist at Massachusetts General Hospital, the overall theme […]
Thank you Lisa and Jackie for sharing your 2021 Florence Forth Virtual experiences on social media after the event and for providing expert tips for this year. What makes someone an expert? They’ve done it! The Florence Forth Virtual Event is an opportunity for you to get involved, celebrate your heroes, raise funds and awareness […]
The AE Alliance is excited to partner with the University Hospitals Neurological Institute, Hashimoto’s Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance (HESA) and Encephalitis411 to present and in-person AE Day: “Strides in Autoimmune Encephalitis.” This assembly is an all-day event focusing on pediatric and adult autoimmune encephalitis (AE) for clinicians, caregivers, and the survivors impacted. We […]