Autoimmune Encephalitis
Dr. Julien Hebert (University of Toronto, Toronto, Ontario, Canada) was awarded a 2024 AEA Community Seed Grant for the investigation of Postacute Management of Anti-Seizure Medications in Autoimmune Encephalitis-Associated Epilepsy. Learn more about his research and how it impacts those affected with autoimmune encephalitis. The start date for the award is September 1, 2024. You have been […]
Dr. J. Nicholas Brenton (The Rector and Visitors of the University of Virginia, Charlottesville, VA, USA) was awarded a 2024 AEA Community Seed Grant for the investigation of Capacity, Endurance, and Physical Activity in Children with MOG+ Encephalitis. Learn more about his research and how it impacts those affected with autoimmune encephalitis. The start date for the […]
Many thanks to Stanley J. Naides, MD, FACP, FACR, Chair, Board of Directors, Autoimmune Encephalitis Alliance as our speaker for the September 2024 AEA Provider Monthly Didactic + Case Discussion series, The Role of the Laboratory in Autoimmune Neurology. The identification of pathological autoantibodies to neural targets has aided diagnosis and prognosis in patients with autoimmune […]
The AE Alliance turned five years old yesterday! Five years ago on Dec. 17, two families that had kids with AE came together in hopes that they could start something to help others suffering from this little-understood disease. The vision was to not only disseminate information to help patients but also to give support to […]
Many thanks to Dr. Sarosh Irani for kicking off our new AEA Provider Monthly Didactic + Case Discussion Series with a presentation on LGI1 Antibody Encephalitis. The AEA Monthly Didactic + Case Discussion series benefits greatly from the invaluable contributions of our committed autoimmune encephalitis experts. These professionals volunteer their precious time, sharing their profound wisdom […]
The AE Alliance and Medical Advisory Board (MAB) are excited to announce our new AEA Monthly Didactic + Case Discussion series. The AE Alliance hosted its inaugural Challenging Case Conference in February 2023. Every alternating month, the MAB and Clinicians Network members were invited to deliberate on challenging cases and explore innovative diagnostic and treatment […]
It was October 11, 2022 when we introduced Dr. Leigh Sepeta & Dr. Elizabeth Wells. Click here for their introductory post where we learned about them, their study plans and how their project would help patients and families affected by AE. In the 2022 AEA Community Seed Grant Final Report, Dr. Leigh Sepeta explains the outcomes of […]
It was September 1, 2022 when we introduced Dr. Matteo Gastaldi. Click here for his introductory post where we learned about him, his study plans and how his project would help patients and families affected by AE. In the 2022 AEA Community Seed Grant Final Report, Dr. Gastaldi explains the outcomes of his project, the Cognitive teleRehabilitation in […]
A recently published study is providing a close look at anti-LGI1 encephalitis which, after anti-NMDA receptor encephalitis, is the second most common autoimmune encephalitis. Anti-LGI1 encephalitis most often affects middle aged patients who come to medical attention because of the quick onset (over a few weeks to a few months) of memory loss. Less commonly […]
Making the diagnosis of autoimmune encephalitis (AE) can be very straightforward when the patient develops features that are highly characteristic of a particular AE. For example, a 30-year old woman with new onset psychiatric symptoms such as hallucinations or strange behaviors and who also has repetitive movements around their mouth in their face (known as […]