Calling all with a history of anti-NMDAR encephalitis to participate in a study!

May 3, 2019

We would like to invite all individuals with a history of anti-NMDA receptor encephalitis (age 15-60 years at the time of symptom onset) to participate in a study of language.

The AE Alliance is honored to be participating in a study led by Dr. Anusha Yekoshumar and medical student Kelsey Martin at The Icahn School of Medicine at Mount Sinai, which has been reviewed by our Medical Advisory Committee. This study involves contributing writing samples from before, during, and after illness as well as answering some questions by phone or email.

The goal is to learn more about the changes that occur in language during and after this disease, as well as how they might correlate with certain clinical signs and relevant brain areas. This will provide further insights into the connections and differences between AE and primary psychiatric diseases.

If you are interested in participating and would like to hear more about the study, please email

We hope this opportunity is one you will be glad to support. Many thanks to Dr. Anusha Yekoshumar and Kelsey Martin for conducting this important research.