Patient Support

We are looking for volunteers to help us manage our online Smart Patients AE community. All you need is a computer, an internet connection, and a passion for helping others affected by AE. The Smart Patients online AE community provides our AE community with a safe online platform to connect with others, from anywhere, at […]

The Research Network launched in May, 2020 and resulted in the first AEA Community Seed Grant Program in 2021. This program supports research focused on the diagnosis, management, and outcomes of individuals with AE. The program is funded by members, friends and supporters of the AE Alliance Community. Would you like to know the answers […]

The AE Alliance is excited to partner with the University Hospitals Neurological Institute, Hashimoto’s Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance (HESA) and Encephalitis411 to present and in-person AE Day: “Strides in Autoimmune Encephalitis.” This assembly is an all-day event focusing on pediatric and adult autoimmune encephalitis (AE) for clinicians, caregivers, and the survivors impacted. We […]

It was October 11, 2022 when we introduced Dr. Leigh Sepeta & Dr. Elizabeth Wells.  Click here for their introductory post where we learned about them, their study plans and how their project would help patients and families affected by AE. In the 2022 AEA Community Seed Grant Final Report, Dr. Leigh Sepeta explains the outcomes of […]