World Encephalitis Day January 17, 2019

World Encephalitis Day is the global awareness day for people who have been directly or indirectly affected by encephalitis. Founded by The Encephalitis Society in the UK in 2014, it is held on February 22 each year and has reached over 80 million people in the past five years. The color associated with this day […]

Florence Forth Virtual: A How To From The Experts! #2 February 1, 2022

Thank you Rachael for sharing your 2021 Florence Forth Virtual experience! We decided the best way for you to understand what it means to participate in the Florence Forth Virtual event is to ask the experts. What makes someone an expert? They’ve done it! Q1 What did you enjoy about the 2021 Virtual Florence Forth […]

Looking back on Florence Forth and the AE Family Luncheon 2019 April 2, 2019

On Saturday March 2 the AE Alliance hosted their annual Florence Forth Race. Around 1,000 runners and walkers participated and the weather was just perfect for a run. We are thankful to everyone that supported this great community event; the participants, the 100+ volunteers who made it all possible, those who supported us financially (raising […]

Florence Forth Virtual: A How To From The Experts! #3 February 8, 2022

Thank you Lisa and Jackie for sharing your 2021 Florence Forth Virtual experiences on social media after the event and for providing expert tips for this year. What makes someone an expert? They’ve done it! The Florence Forth Virtual Event is an opportunity for you to get involved, celebrate your heroes, raise funds and awareness […]

Save the Date – March 1, 2014 – Florence Forth Road Race October 2, 2013

There are only five more months until FLORENCE FORTH 2014.  We have been busy making plans for the second annual running of FLORENCE FORTH .  And now it is your turn to join in the planning.  Here are five easy steps to take: 1st:  Save the Date.  March 1, 2014 2nd: Get ready to register for FLORENCE FORTH on October 15th.  Use promo code […]

World Encephalitis Day 2020 Conference November 29, 2019

AE Alliance is proud to be joining forces with The Anti-NMDA Receptor Encephalitis Foundation, Encephalitis 411, the Encephalitis Society, HESA, and Encephalitis Global in organizing the World Encephalitis Day 2020 Conference in Dallas, TX. The World Encephalitis Day 2020 Conference welcomes survivors and caregivers to attend and interact while celebrating World Encephalitis Day. We feel very fortunate to have […]

Florence Forth Virtual: How Does A First-Timer Celebrate Heroes? February 15, 2022

Thank you Meg for sharing your plans for Florence Forth Virtual and In-Person! Are you still unsure how to create your Florence Forth Virtual Event? Our new Director of Patient Support, Programs and Administration focuses on the event everyday. We asked her a few questions and found out how she’s celebrating her heroes this year. […]

It’s Our 1st Anniversary December 17, 2013

Today, December 17th, is the one year anniversary of the Autoimmune Encephalitis Alliance becoming a non-profit organization. 2013 was a wonderful year with many great events, including Florence Forth, Across the Starting Line, educational Grand Rounds and book readings and many amazing connections with families, patients and doctors. We look forward to working with all of […]

AEA Family weekend March 6 – 8, 2020 December 6, 2019

You are invited to join us from March 6 – 8, 2020 for the AEA Family Weekend in Durham, NC. Meet other families going through similar challenges. Share stories and learn about the latest treatments and discover strategies to make every day better. Meet with experts in the field of Autoimmune Encephalitis. There is plenty […]

Celebrating Partnership: EUROIMMUN Neuroimmunology Summit May 5, 2022

Thank you EUROIMMUN for inviting the AE Alliance family to attend the EUROIMMUN Neuroimmunology Summit. All AE Alliance Clinicians and Support Network members are invited to attend this one-day virtual summit bringing together neurologic medical experts from across the United States. The topics to be discussed include: Updated guidelines for the diagnosis of neuroimmunology conditions […]