International Experts Gathering in Durham, NC to Discuss Cure for Rare Disease March 24, 2014

First Annual International Autoimmune Encephalitis Symposium, March 27-28, 2014 On March 27th, doctors and scientists from across the US and the world will gather for a two day AE Symposium, the goal of which is to improve the diagnosis, treatment and care for children and adults with autoimmune encephalitis (AE) and advance research towards a […]

The AEA Research Network April 28, 2020

#GivingTuesdayNow on May 5, 2020, is a global day of generosity and unity, a day to come together and give back in response to the unprecedented need caused by COVID-19. AE Alliance will participate in Giving Tuesday Now and launch the AEA Research Network with webinars by Dr. Sean Pittock (Mayo Clinic) and Dr. Stanley […]

International Symposium on Autoimmune Encephalitis October 14, 2014

Today, we’re thrilled to release the official report from the First Annual International Symposium on Autoimmune Encephalitis held March 27-28, 2014 in Durham, N.C. The symposium was funded with the proceeds from the 2014 Florence Forth Road Race! The primary goal of the symposium was to establish a collaborative medical community to develop a consensus […]

World Encephalitis Day Conference 2021 October 22, 2020

Mark your calendar! The World Encephalitis Day Alliance will be hosting the World Encephalitis Day Conference on Saturday February 20th, 2021. This will be a virtual conference, so anyone, anywhere can participate. We are literally taking you across the globe, with speakers from Australia, Europe, and the United States. Our Keynote Speakers are Prof. Tom […]

Autoimmune Encephalitis Alliance holding strategic meeting December 14, 2015

The Autoimmune Encephalitis Alliance is holding a strategic meeting on December 15.  The board of directors and invited advisors are gathering in Durham, NC, with the goal of the thinking strategically regarding the organization.  Based on this group’s recommendations, we expect to continue to set up structures that will empower the AE Alliance to increase […]

Building Bridges November 10, 2020

AE Alliance and Hashimoto’s Encephalopathy SREAT Alliance (HESA) are excited to announce the virtual conference: ‘Autoimmune Encephalitis: Building Bridges.’ The aim of this conference is to enhance patient care and improve outcomes for those affected by AE, by promoting a multidisciplinary approach to diagnosis, treatment, and recovery. ‘Building Bridges’, is a place to exchange ideas, […]

Happy 3rd birthday to the AE Alliance! December 17, 2015

The AE Alliance turns 3 years old today!  Three years ago on this date, two families that had kids with AE came together in hopes that they could start something to help others suffering from this little-understood disease.  The vision was to not only disseminate information to help patients but also to give support to […]

On Your Mark, Get Set, Register for Florence Forth January 8, 2021

Meet Lisa!  (Video production by Jack Chipman, On Saturday, March 6, 2021, AE Alliance will organize the 9th annual Florence Forth run/walk in Durham, NC and kick off the first virtual Florence Forth run! Will and Leslie McDow started the Florence Forth run’/walk to commemorate the day that their six-year-old daughter Florence died from […]

Autoimmune Encephalitis Alliance co-sponsors pediatric AE treatment consensus meeting December 5, 2016

The Autoimmune Encephalitis Alliance, along with Children’s National Health System, and the Childhood Arthritis and Rheumatology Research Alliance, co-sponsored the first International Pediatric Autoimmune Encephalitis Treatment Consensus Meeting at the Carnegie Endowment for International Peace in Washington, DC, on November 14. “The AE Alliance was honored to help bring many of the world’s leading experts […]

Florence Forth July 30, 2013

Our family has always been a running family. A jogging stroller lived on our porch or dining room for years. We ran when full time jobs became stressful, while Laura and Florence napped as babies, and just exercising our dog. When Florence fell ill with an unknown disease at age two, we increased our running […]