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Dr. Eric Lancaster discusses The uses and misuses of titers in autoimmune encephalitis June 24, 2014

Dr. Eric Lancaster Assistant Professor of Neurology, Perelman School of Medicine, University of Pennsylvania The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be viewed on the AE […]

Anti-NMDA Receptor Encephalitis in Psychiatry April 11, 2014

Anti-NMDA Receptor Encephalitis in Psychiatry Kayser et al. Curr Psychiatry Rev. 2011; 7(3):189-193. “Anti-NMDA receptor encephalitis is an autoimmune disorder in which antibodies attack NMDA (N-methyl-D-aspartate)-type glutamate receptors at central neuronal synapses. Symptoms include a highly characteristic set of neurologic deficits, but also prominent psychiatric manifestations that often bring mental health professionals into the […]

International Experts Gathering in Durham, NC to Discuss Cure for Rare Disease March 24, 2014

First Annual International Autoimmune Encephalitis Symposium, March 27-28, 2014 On March 27th, doctors and scientists from across the US and the world will gather for a two day AE Symposium, the goal of which is to improve the diagnosis, treatment and care for children and adults with autoimmune encephalitis (AE) and advance research towards a […]

Anti-N-methyl-D-aspartate receptor encephalitis: A targeted review of clinical presentation, diagnosis, and approaches to psychopharmacologic management February 28, 2014

Anti-N-methyl-D-aspartate receptor encephalitis: A targeted review of clinical presentation, diagnosis, and approaches to psychopharmacologic management Kruse et al Annals of Clinical Psychiatry. 2014 Feb;26(1):e1-9 Anti-N-methyl-d-aspartate receptor encephalitis was formally described in 2007 and includes a range of psychiatric and neurologic symptoms. Most patients with anti-NMDAR encephalitis initially present to psychiatrists for diagnosis and treatment. […]

It’s Our 1st Anniversary December 17, 2013

Today, December 17th, is the one year anniversary of the Autoimmune Encephalitis Alliance becoming a non-profit organization. 2013 was a wonderful year with many great events, including Florence Forth, Across the Starting Line, educational Grand Rounds and book readings and many amazing connections with families, patients and doctors. We look forward to working with all of […]

Sandra Stein capturing heart and sole in her Bloom Article October 21, 2013

I am in awe of writers… their ability to choose the exact word to bring the emotion or feeling directly to the reader. I am there. I am her. I feel this about Sandra because she is a mom warrior. And not only that, but a mom warrior who is able to share her war […]

Sharing A Story- A Brother’s Homecoming October 6, 2013

This post was sent to us by a young man who has a brother diagnosed with Autoimmune Encephalitis.  You can share your story about AE. Please read on for a sibling perspective: June 10, 2013 marked my brother Sammy’s return from Duke after 8 long months. There were no balloons, parades or red carpet moments, […]

Save the Date – March 1, 2014 – Florence Forth Road Race October 2, 2013

There are only five more months until FLORENCE FORTH 2014.  We have been busy making plans for the second annual running of FLORENCE FORTH .  And now it is your turn to join in the planning.  Here are five easy steps to take: 1st:  Save the Date.  March 1, 2014 2nd: Get ready to register for FLORENCE FORTH on October 15th.  Use promo code […]

Autoimmune Encephalitis September 30, 2013

Autoimmune Encephalitis Leypoldt F, Wandinger K-P, Bien CG, Dalmau J. European neurological review. 2013;8(1):31-37. The term autoimmune encephalitis is used to describe a group of disorders characterised by symptoms of limbic and extra-limbic dysfunction occurring in association with antibodies against synaptic antigens and proteins localised on the neuronal cell surface. Since many patients respond […]

Sharing a Florida Family Story: Fighting for the Prize August 30, 2013

We are hearing from many of you. Your stories fill me with passion to help families with this disease and fight to figure out a way to conquer it. But fighting is exhausting as we all know. And from somewhere inside of us, we keep finding a way to another path, another treatment, another doctor […]