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Autoimmune Encephalitis Alliance holding strategic meeting December 14, 2015

The Autoimmune Encephalitis Alliance is holding a strategic meeting on December 15.  The board of directors and invited advisors are gathering in Durham, NC, with the goal of the thinking strategically regarding the organization.  Based on this group’s recommendations, we expect to continue to set up structures that will empower the AE Alliance to increase […]

Fellow Survivors Gather at Florence Forth November 25, 2014

I am not a runner. I cringe at the thought of running. So naturally, when Susannah Cahalan told me about the Florence Forth Road Race in Durham NC, I was a bit skeptical. However, when she added that there would be fellow survivors of autoimmune encephalitis attending, I made my decision to go. There were […]

“We are Survivors” November 17, 2014

We are all survivors of autoimmune encephalitis.   Patients, families, friends, caretakers, doctors, nurses, rehabilitation specialists, we have all endured the worst this disease can throw at us.  And we are surviving. This weekend I had the chance to meet four amazing survivors.  Each has their own story to tell.  They shared the same stage: a six-year-old […]

AE Clinicians Network: a new resource November 7, 2014

After my daughter became sick at the age of two-and-a-half, my husband and I began a quest to find a doctor who could identify what was ailing her and treat her. Six years and 20 doctors in four states later, we were told she had autoimmune encephalitis (AE). The AE Alliance wants to make stories […]

International Symposium on Autoimmune Encephalitis October 14, 2014

Today, we’re thrilled to release the official report from the First Annual International Symposium on Autoimmune Encephalitis held March 27-28, 2014 in Durham, N.C. The symposium was funded with the proceeds from the 2014 Florence Forth Road Race! The primary goal of the symposium was to establish a collaborative medical community to develop a consensus […]

Dallas Cowboy Amobi Okoye recovers from NMDA receptor encephalitis August 24, 2014

Dallas Cowboy defensive tackle Amobi Okoye has recovered from NMDA receptor encephalitis and is preparing for a return to the NFL this fall.  I had to read the story by The Dallas Morning News’ Rainer Sabin twice. Okoye is the first professional athlete to have autoimmune encephalitis and the first to attempt to return to professional sports. […]

Susannah Cahalan and Dr. Najjar discuss AE August 14, 2014

Susannah Cahalan and Dr. Souhel Najjar NY Times best selling author and AE survivor Susannah Cahalan reads from Brain on Fire and has a conversation with the doctor who saved her life, Dr. Souhel Najjar. The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts […]

Dr. Russell Dale discusses Autoantibodies in Childhood Encephalitis June 24, 2014

Dr. Russell Dale Associate Professor, Discipline of Paediatrics and Child Health, Sydney Medical School; Consultant Neurologist, the Children’s Hospital at Westmead The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos […]

Dr. Sarosh Irana discusses Faciobrachial Dystonic Seizures: clinico-serological correlations June 24, 2014

Dr. Sarosh Irani Associate Professor, Division of Clinical Neurology; Principal Investigator, Nuffield Department of Clinical Neurosciences The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be […]

VIDEO: “Autoimmune Encephalopathies: The widening spectrum” June 24, 2014

Dr. Angela Vincent Emeritus Professor of Neuroimmunology, Division of Clinical Neurology, University of Oxford The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be viewed on […]