Autoimmune Encephalitis Alliance
Well-known pioneer in the field of autoimmune encephalitis, Josep Dalmau, reported that interest in the emerging field of autoimmune neurology has increased enough to warrant its first focused section meeting at the annual American Academy of Neurology conference this year. He stated that ongoing studies are providing new information on the pathologic mechanisms of action […]
We are encouraged that researchers at Columbia University Medical Center in NY, NY recently published a review article, bringing together many facets of research on how antibodies and other types of immune cells are able to cross the blood-brain barrier and gain access to the brain, causing autoimmune encephalitis. They stated that these routes of […]
Tenga en cuenta: usamos Google translate para la traducción de este blog, originalmente en el sitio web de la Alianza de Encefalitis Autoinmune. Nos disculpamos si hay algún error. Los espectadores de todo el país vieron el domingo, 27 de agosto, cuando tres damas (sobrevivientes) y sus familias compartieron historias de sus tumultuosas experiencias con […]
Rebecca Katz, a nationally known nutritionist, chef, and speaker has published “The Healthy Mind Cookbook.” Rebecca has collected numerous accolades, including having worked with the nation’s top wellness experts, as well as being featured in The Washington Post, The Atlantic, the Oprah Show, and NPR. She has sorted through the large and growing volume of […]
Viewers nationwide watched on Sunday, August 27, as three ladies (survivors!) and their families shared stories of their tumultuous experiences with AE on the new HLN series “Something’s Killing Me.” On Monday, August 28, CNN followed the program with a feature story on the disease . The rapid descent into illness that often occurs and the amazing […]
HLN will air an episode on autoimmune encephalitis as part of their series “Something’s Killing Me,” on August 27, 9 p.m. EST. The show will feature the experiences of Susannah Cahalan, Emily Gavigan, and Madison Jensen. We are pleased that AEA had the privilege of helping CNN answer questions about the disease and make introductions […]
“Mommy, the baby isn’t moving.” Words no parenting class can prepare you for. As I rushed to my son’s aid, I would find him face down, unresponsive behind the couch. His skin cold to the touch, his eyes glazed over, drool dripping from his mouth. Alive, but my little boy was not there, he was […]
The Research Network launched in May, 2020 and resulted in the first AEA Community Seed Grant Program in 2021. This program supports research focused on the diagnosis, management, and outcomes of individuals with AE. The program is funded by members, friends and supporters of the AE Alliance Community. Would you like to know the answers […]
Dr. Juliette Brenner (Erasmus MC University Medical Center, Rotterdam, The Netherlands) was awarded a 2024 AEA Community Seed Grant for the investigation of Validation of a new (patient-reported) outcome measure for encephalitis. Learn more about her research and how it impacts those affected with autoimmune encephalitis. The start date for the award is September 1, 2024. You have […]
Dr. Julien Hebert (University of Toronto, Toronto, Ontario, Canada) was awarded a 2024 AEA Community Seed Grant for the investigation of Postacute Management of Anti-Seizure Medications in Autoimmune Encephalitis-Associated Epilepsy. Learn more about his research and how it impacts those affected with autoimmune encephalitis. The start date for the award is September 1, 2024. You have been […]