The following was reported by Stephanie Innes at the Arizona Daily Star. The opening of the new Children’s Postinfectious Autoimmune Encephalopathy Center in Tucson marks a new era of pediatric research for the University of Arizona, UA president Ann Weaver Hart said Tuesday during an opening event held at Banner-University Medical Center Tucson. The disorders hit […]
The 2020 year has been unprecedented in so many ways. Though this pandemic has wreaked havoc in all our lives, our AE community has experienced the disruptions in profound and tangible ways, from interruptions in treatment to implementing particularly stringent measures to protect fragile immune systems. In partnering with you through your journey with AE […]
Suzi and Bob Given have contributed $25,000 to establish a matching campaign for the Autoimmune Encephalitis Alliance. This means donations we receive will be matched 1:1 up to $25K, by the Given’s gift. Bob is recovering from autoimmune encephalitis and states, “I directly benefited from the work being done by AEA, as have so many others. This donation […]
Our partner Euroimmun is organizing a great webinar that is open to all. The Euroimmun Academy is proud to present the upcoming “Neurology Webinar Series”. Join us on January 28th from 11-12:30pm EST for our first webinar exploring Autoimmune Encephalitis. For more information or to Register for this free virtual event please click here. This […]
The Autoimmune Encephalitis Alliance and Option Care Enterprises, Inc. are co-sponsoring a clinical trial at Mayo Clinic to evaluate intravenous immunoglobulin (IVIG) treatment in patients with autoimmune epilepsy who fail to benefit from standard epilepsy medications. This study, the first of its kind, builds on Mayo Clinic research advances identifying new approaches to the diagnosis and treatment […]
The Autoimmune Encephalitis Alliance awarded its first grant to the Autoimmune Brain Disease Program at Duke University Children’s Hospital. Co-directors of the Program, Dr. William Gallentine, Pediatric Neurology and Dr. Heather van Mater, Pediactric Rhuematology, accepted the grant and will use the funding to advance their ground-breaking, multidisciplinary clinic and related research. The $11,000 grant […]
World Encephalitis Day (“WED”) is celebrated every February 22 – just remember 222. While we at the Autoimmune Encephalitis Alliance focus on autoimmune encephalitis, we are so happy to join in supporting all of those affecting by any form of encephalitis. To show your support for those with encephalitis of all types, wear the color red […]
Thank you EUROIMMUN for inviting the AE Alliance family to attend the EUROIMMUN Neuroimmunology Summit. All AE Alliance Clinicians and Support Network members are invited to attend this one-day virtual summit bringing together neurologic medical experts from across the United States. The topics to be discussed include: Updated guidelines for the diagnosis of neuroimmunology conditions […]
Two U.S. non-profits join forces to combat autoimmune encephalitis. “The AE Alliance is proud of the long-standing relationship with the Hashimoto’s Encephalopathy SREAT Alliance. We are grateful beyond words for HESA’s generosity. This collaboration allows both groups to look anew at imaginative ways to raise awareness on all autoimmune encephalitis fronts, fight this disease, and […]
Dr. Matteo Gastaldi (C. Mondino National Institute of Neurology Foundation, IRCCS, in Pavia, Italy) was awarded a 2022 AEA Community Seed Grant to investigate the Cognitive teleRehabilitation in patients with Encephalitis of AutoIMmune etiology: CoRE-AIM study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September 1, 2022. You […]