Over 150 patients and family members affected by autoimmune encephalitis gathered in Durham, NC, for a luncheon on March 5. Known simply as the “Family Lunch” the event is a chance to meet others affected by autoimmune encephalitis, laugh, celebrate, remember those lost to the disease, and share stories both privately and publicly. Having grown in […]
For World Encephalitis Day 2019, Dr. Gallentine talks about his work and research and how he sees the field of AE evolving. Dr. William Gallentine is a pediatric neuroligst at Stanford University in Palo Alto CA. His research interests focus on the role of inflammation and genetics in the development of epilepsy, and the overlap between […]
AE Alliance and Hashimoto’s Encephalopathy SREAT Alliance (HESA) are excited to announce the virtual conference: ‘Autoimmune Encephalitis: Building Bridges.’ The aim of this conference is to enhance patient care and improve outcomes for those affected by AE, by promoting a multidisciplinary approach to diagnosis, treatment, and recovery. ‘Building Bridges’, is a place to exchange ideas, […]
Whether you are living with AE, are a caregiver, family member, friend, physician, researcher, Board Member, MAB Member, program partner or sponsor or this is your first time ever to the Autoimmune Encephalitis website, we are excited you are here and ready to develop an attitude of gratitude! This program is inspired by a year […]
WEDA 2025 Conference & Conversations Join us for 3 days of inspiring talks, networking, and thought-provoking discussions in person (cannot be attended virtually). CLICK HERE TO REGISTER FOR THE EVENT AND OPTIONAL DINNER VIA EVENTBRITE Come join us at the Kinne Auditorium, Mayo Building, Mayo Clinic Jacksonville FL for a three day event filled with insightful sessions, engaging […]
A newly released precis provides clear diagnostic criteria for autoimmune encephalitis. This effort, lead by Dr. Domingo Escudero, Dr. Francesc Graus and Dr. Josep Dalmau, summarizes the Lancet Neurology article “A clinical approach to autoimmune encephalitis“. The Lancet Neurology article provides the first broadly accepted criteria for diagnosing autoimmune encephalitis. A previous AE Alliance blog reviewed the article and it’s connection to the first International […]
For World Encephalitis Day 2019, Dr. Muscal talks about his work and research and how he sees the field of AE evolving. Dr. Eyal Muscal is a pediatric rheumatologist at Texas Children’s Hospital with a MS Degree in Clinical Research whose activities include patient care, fellowship education, quality improvement, and clinical research. He is the Childhood […]
Our partner Euroimmun is organizing a great webinar that is open to all. The Euroimmun Academy is proud to present the upcoming “Neurology Webinar Series”. Join us on January 28th from 11-12:30pm EST for our first webinar exploring Autoimmune Encephalitis. For more information or to Register for this free virtual event please click here. This […]
Dr. Eoin Flanagan from the Mayo Clinic in Rochester, Minnesota and colleagues from multiple institutions have published this article demonstrating that more than one in five patients diagnosed with autoimmune encephalitis (AE) were misdiagnosed and that about half of these patients actually had a primary behavioral or psychiatric disorder. Red flags associated with receiving the […]
Many thanks to Dr. Maarten J Titulaer, MD, PhD, Associate Professor of Neurology, Erasmus University Medical Center, Rotterdam, the Netherlands, AEA Medical Advisory Board Member for speaking at our January 2025 AEA Provider Monthly Education Series and presenting Anti-NMDA Receptor Encephalitis. Since the initial description of anti-NMDAR encephalitis in 2005, we have been able to determine the full […]