We are looking for volunteers to help us manage our online Smart Patients AE community. All you need is a computer, an internet connection, and a passion for helping others affected by AE.
The Smart Patients online AE community provides our AE community with a safe online platform to connect with others, from anywhere, at any time. When dealing with a rare and relatively new disease, obtaining the input of others is especially valuable. This value is reflected in the conversations that are happening in our online Smart Patients community. The discussions are organized in topics and easily searchable. Some examples of current conversations are; How long should IVIG last, Treatments for AE, and Need advice on how to get an uncooperative family member into an assessment for AE.
If you are interested in becoming an Online Community Engagement Volunteer, please email us at [email protected] to learn more about the responsibilities and time commitment involved.
Thank you for your support!