Tag: Life with AE

“Miracle Flights” provides free medical flights to specialized care and second opinions

“Miracle Flights for Kids” is a Las Vegas based non-profit that provides free medical flight to kids and their families to see specialized caregivers and to seek second opinions. Miracle Flights contacted AEA last year and asked if we would help spread the word about their work. Their mission is “to improve access to health care by …

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AE Families Come Together

If you are reading this you already know that autoimmune encephalitis can be an isolating experience. That’s one reason the Autoimmune Encephalitis Alliance organizes and hosts the AE Family Lunch in association with the Florence Forth run-walk in Durham, NC. This year the AE Family Lunch will take place on March 5, 2016. All AE patients and families …

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“We are Survivors”

We are all survivors of autoimmune encephalitis.   Patients, families, friends, caretakers, doctors, nurses, rehabilitation specialists, we have all endured the worst this disease can throw at us.  And we are surviving. This weekend I had the chance to meet four amazing survivors.  Each has their own story to tell.  They shared the same stage: a six-year-old …

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