Parents with AE Support Group

Tuesday, April 23rd, 6:00 PM Eastern

The AEA Parents with AE Support Group invites parents with AE to discuss personal experiences and challenges unique to managing the adventures of parenting a child, or children, along with the demands of living with AE.  Whether you are a new or experienced parent, join us and let’s learn from and support each other.

This peer-led, Parents with AE support group was initiated in response to multiple shared stories in our Community Support Groups from parents with AE searching for support with the unique challenges they face daily. It is a pilot group and will continue based on attendance, participation, and feedback from participants. 

NOTE: If you are diagnosed with AE and a parent this meeting is for you. If you are a parent and have a child diagnosed with AE, you are invited to the Caregivers Support Group Meeting.

This group is lead by Rachael.

Email and request to register for the Parents with AE Support Group Meeting.

Please note: All AE Alliance support groups are peer-led and do not provide medical advice. Our support groups offer an opportunity for patients and caregivers to share personal experiences and feelings, coping strategies, and firsthand information about AE and/or treatments. Each person’s situation is unique and we do not suggest that there is a single, standard way of navigating the illness. All attendees respect and value the privacy of every participant and agree not to share or disseminate any personal information of other AE Alliance support group attendees.

Location: Zoom

Type: Audience Specific Support Group - Open Discussion