Amanda (right) and her mother discuss her fight with AE. Video provided by UPenn Medicine.

Imagine waking up with no memory of the past 3 months

Imagine waking up in the hospital with no memory of the past three months. Amanda and her mother talk about her treatment and recovery from AE; including the care she received at UPenn Medical Center in this four-and-a-half minute video.

Amanda’s mother, Kerri, told AEA, “We wanted to share our experience to help others. Upon learning about your site, I immediately went on it and found so much information, and equally great comfort in knowing that we were not alone with this disease.”

Kerri went on to state that, “Our daughter was treated with IVIg and steroids, then transferred to UPenn. There, Amanda was under the care of Dr. Eric Lancaster. She was given a single dose of Cytoxan along with four treatments of Rituximab….we saw wonderful results. Amanda responded so well to this treatment. It has been 2 years since her diagnosis and treatment and we are happy to say she is back to work full-time as an RN, pursuing her a Masters degree in nursing, and doing well.” This story shared by Kerri should not be construed as medical advice or in any way taken to be the provision or practice of medical, nursing or professional health-care advice or services.  The information should not be considered complete or exhaustive and should not be used in place of a visit, call, consultation or advice of your physician or other health-care provider.  You should not use the information in this or any Autoimmune Encephalitis Alliance, Inc. communication to diagnose or treat autoimmune encephalitis or any other disorder without first consulting with your physician or healthcare provider. 

We  are grateful that Kerri and Amanda contacted AEA to share their experience. We hope you find aid in there sharing.