Tag: Anti-NMDAR

Join 1600 others for Florence Forth Race and Family Lunch on March 4, 2017

You don’t have to be a runner or walker to support those affected by autoimmune encephalitis on March 4, 2017, but if you are, come share your spirit, laughter, and competitive spirit with 1600 soon-to-be friends at Florence Forth. There is also a wonderful Family Lunch for patients and their immediate families at noon (doors …

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World Encephalitis Day 2/22

World Encephalitis Day (“WED”) is celebrated every February 22 – just remember 222.  While we at the Autoimmune Encephalitis Alliance focus on autoimmune encephalitis, we are so happy to join in supporting all of those affecting by any form of encephalitis. To show your support for those with encephalitis of all types, wear the color red …

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Rare Disease Day is Feb. 28

The AE Alliance is proud to participate in Rare Disease Day, launched by EURORDIS and its Council of National Alliances, on February 28. We appreciate the Mesothelioma Cancer Alliance and the National Organization for Rare Diseases bringing us into this day of recognition. This year’s slogan is “With research, possibilities are limitless.” While each participating organization …

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New treatment for anti-NMDAR autoimmune encephalitis reports Charité – Universitätsmedizin Berlin

One of the one of the largest university hospitals in Europe, Charite’, recorded significant progress in treating anti-NMDAR, including in patients who did not previously respond to treatment. Anti-NMDA receptor encephalitis is an inflammatory disease that affects the central nervous system. It is a rare autoimmune disease that results in the body producing antibodies against …

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Fun way to explain anti-NMDAR autoimmune encephalitis to kids…and adults

It is rare to find humor in autoimmune encephalitis but James Radke and Levent Efe created a story on anti-NMDAR that is accessible to kids and adults alike. Think of it as a guide to anti-NMDAR for dummies. This creative look at “Cleo” and “Irene” the neurons, and  “Shelia” who has anti-NMDAR on her membrane is …

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Listing of known autoimmune encephalitis antibodies published by Perelman School of Medicine at the University of Pennsylvania

We get a lot of questions about known AE antibodies.  Identification of antibodies on a cellular level has led to a reclassification and renaming of many diseases. Note that many people who have AE are antibody negative, which most in the medical community agree is because all antibodies simply have not yet been discovered. The Center for Autoimmune Neurology …

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Podcast on autoimmune encephalitis to air Friday, Nov. 4

MyNDTalk with Dr. Pamela Brewer is focusing on autoimmune encephalitis on Friday, Nov. 4. The program airs at www.MyNDTALK.org . After Friday’s air date, the program will be archived at there according to the day (not date) the program aired. MyNDTALK app is available for download from iTunes, TuneIn and www.soundcoud.com for public use, and www.prx.org for non-profit & educational use. www.blogtalkradio.com/MyNDTALK-with-Dr-Pamela-Brewer airs @ 8 …

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