Support the Alliance


Monetary donations

Your donations save lives and offer vital assistance to those affected by AE. We communicate directly with patients, families, and medical professionals because of your financial support. We are grateful for every dollar we receive, and we promise to use our resources in ways that are responsible and provide the most good for the greatest number of people. View our financial information.

If you prefer to donate by mail, please do not send cash. Make your check payable to Autoimmune Encephalitis Alliance and send to:

Autoimmune Encephalitis ALliance
920 Urban Avenue
Durham, NC 27701

Make a difference today.  DONATE


Your organization is a force for justice in the medical community to stop the cruel discrimination and lack of knowledge of AE, which causes immense suffering [for] valuable, respectful human beings.
Thank you for having the doctor get in touch with us. Needless to say, we were floored. I just wanted to thank you for helping us out of waiting and we will continue searching. Toby deserves a better life than this.

Volunteer with AEA

We are constantly astonished at the generosity of giving, even while going through unimaginable difficulty. A willingness to “pay it forward” is at the very heart of what we want to accomplish every day through the Alliance. You are inspiring! There are several ways you can donate your time to impact the lives of the AE community. If you are interested in one or more of these opportunities, please sign up to volunteer.

Medical Community

Share your professional knowledge with us. Do you work in the medical field? If you treat patients, edit medical journals, conduct research, etc. your knowledge provides us with powerful information. Where appropriate, we will promote it to the AE community.

Become a member of AEA’s Scientific Planning Committee. If you are a physician or researcher with extensive knowledge of AE, consider joining our Scientific Planning Committee. Please contact us if interested.


Host an information session or fundraiser in your community. AEA can help by providing handouts, giveaways and/or raffle items (e.g. signed copies of Susannah Cahalan’s New York Times best-seller, Brain on Fire, AEA stainless steel coffee mugs, bound notebooks, etc.), and propose ideas on how to have a successful event. We know it is often difficult to explain AE to family members, coworkers, and friends. Hosting an event disseminates knowledge to aid others’ understanding, and spreads awareness of the disease.

Volunteer for the Florence Forth running/walking race. The Florence Forth road race, held annually in Durham, NC, on the first Saturday in March, is the largest annual fundraiser for AEA. It take a ton of volunteers to host 1400 runners and walkers. You will have a ball being part of the event. We always need people to help with registering runners, passing out water on the course, directing racers, putting out traffic cones, etc. We have needs on both race day (Saturday) and the day before the race (Friday).

Be a guest blogger. Aren’t sure how to help? Everyone has a story, and we’d like for you to share yours. Don’t worry: we can provide post help, including editing and formatting. We receive so many compliments from those who have found comfort reading about others’ experiences through our blog, and just as many kind words from those who write for us and find solace in sharing their story.

Participate in our Patient to Patient Network. Connecting people with similar experiences is something we do at AEA. While we make many connections because of individual requests, we are currently developing this network so that any person who has a relationship with AE can connect with another who is at the same place in their journey. If you have experience with these types of peer-to-peer networks, or if you want to be a participant in connecting to others affected by the disease, please sign up to volunteer.