Other Resources for Patients and Caregivers

Smart Patients Online AE Community

Connect with other families and patients as they share their stories and hard won lessons living with autoimmune encephalitis.

Join our Smart Patients Online AE Community for patients and caregivers.

Autoimmune Encephalitis Specific Sites

The Alliance is building a list of the known types of AE and will add resource links where available. Please connect with us to let us know of additional resources. [NOTE: These are external links. The AE Alliance does not certify the accuracy of information contained on these sites.]

Autoimmune Disease Groups

The American Autoimmune Related Diseases Association Inc (AARDA) provides information on the more than 100 known autoimmune diseases.

Encephalitis Focused Groups

Encephalitis Global, Encephalitis411 and The Encephalitis Society, provide resources to patients and families with a wide range of encephalitis diseases.

Information for Parents of School Age Children

School age children are entitled to accommodations under U.S. law, and may qualify for an Individualized Education Program (IEP) for acquired cognitive problems and/or ADD.  Both the National Center for Learning Disabilities and the National Dissemination Center for Children with Disabilities provide useful information on IEPs and other resources. 

Legal Help for Parents of Special Needs Children

The American Bar Association provides information on free legal services for special populations.

National Disability Rights Network

NDRN is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP). There is a P&A/CAP agency in every state and U.S. territory as well as one serving the Native American population in the four corners region.

STAR Institute for Sensory Processing Disorder

STAR Institute is the premier treatment, research and education center for children and adults with Sensory Processing Disorder (SPD). This includes feeding disorders and other disorders with sensory issues such as autism and ADHD.