Patient Support

If you or a family member has autoimmune encephalitis (AE), we want you to know you are not alone. AE, once considered rare by the medical community, is more widely diagnosed today — though the exact number of AE cases is unknown.

The good news is that recovery is possible. A 2013 peer-reviewed study by Dr. Titulaer, Dr. Dalmau and colleagues reported that 53% of patients with Anti-NMDA autoimmune encephalitis who received a standard immunomodulation therapy showed improvement within 4 weeks, and 81% of patients eventually achieved substantial or complete recovery.

Even with increased knowledge and awareness of the disease, many patients and their families report delays in diagnosis, a lack of clarity about treatment options and feelings of isolation. It’s the AE Alliance’s mission to change that.

These pages provide up-to-date information on symptomsdiagnosistreatmentrecovery and resources. Whether you or a family member suspects AE or has been diagnosed, we hope you’ll find the information and support you need here and on our blog and Facebook page.

Welcome Kit

If you’re new to AE, we have a printable Welcome Kit PDF designed to be a helpful beginner’s resource. The kit features tips, medication charts, and more.

Download the Kit

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