If you or a family member has autoimmune encephalitis (AE), we want you to know you are not alone. AE, once considered rare by the medical community, is more widely diagnosed today — though the exact number of AE cases is unknown.
The good news is that recovery is possible. A 2013 peer-reviewed study by Dr. Titulaer, Dr. Dalmau and colleagues reported that 53% of patients with Anti-NMDA autoimmune encephalitis who received a standard immunomodulation therapy showed improvement within 4 weeks, and 81% of patients eventually achieved substantial or complete recovery.
Even with increased knowledge and awareness of the disease, many patients and their families report delays in diagnosis, a lack of clarity about treatment options and feelings of isolation. It’s the AE Alliance’s mission to change that.