Do you have experience with Rituximab/Rituxan as treatment for autoimmune encephalitis?

One of the most frequent requests we receive from patients/caregivers seeks greater information on the use of Rituximab (trade name is Rituxan). Are you a caregiver, recovering patient, or physician that has experience with the use of Rituximab as a treatment for AE that you believe would benefit others? There are two ways you can help. 1) Share your story with us on our contact page. We will use these stories as the basis for a future blog post on Rituximab, and use the them to aid new patients looking for information. We will keep the source of your stories confidential. 2)Would you be willing to email directly with a patient/caregiver to be a comforting ear and share your experience? If so, please write to us at [email protected].

Currently, we reference Rituximab on the “Treatment“page of our website as one of the three most common “second line” treatments. Patients who do not improve on first line treatments may be given Rituximab; a drug intended to suppress the immune system. Rituximab is cell-targeted antibody injection that helps the immune system destroy certain blood cells that may cause the immune system to create autoantibodies. Common side effects during infusion include fever, shaking, fatigue, or nausea. Other adverse effects include cardiac arrest, cytokine release syndrome, and types of immune toxicity. Visit side effects and more information to learn more about this drug. Our thanks to the Mayo Clinic for providing this data-based information.