Brain on Fire 5K for Hope

Information – The Dewees Family is organizing a 5K run to raise awareness for Autoimmune Encephalitis in honor of their son Luke. He was diagnosed with AE a day after turning 13 and suggested they would organize a run to raise funds and awareness.  Read more

Date – September 21, 2019

Location – Friedman Park, Newburgh IN

Type – 5K run and kids fun run

Amount Raised – $26,000

Walk on Walk on Together Anti-NMDAR Encephalitis Awareness

Information – Team Fledderjohn is fundraising and raising AE Awareness in honor of their son Alex. Please join them in West Chester, Ohio for an AE Awareness gathering. They will have a neurologist and psychiatrist speak at this event and there will be room for questions. Read more

Date – August 17, 2019

Location – West Chester Hospital, OH

Type – AE Awareness gathering

Amount Raised – $3,323

Florence Forth Road Race 

Information – Florence Forth was started by Leslie and Will McDow who lost their daughter Florence on March 4th, 2012 after a long battle with autoimmune encephalitis. Read more.

Date – March 2, 2019

Location – Durham NC

Type – 10K, 5K run and walk

Amount Raised – $38,000

Host your own AE Awareness gathering

Raising AE Awareness is key to early diagnosis and treatment.

AE Alliance has created an ‘AE Awareness tool box’, which you can use for your gathering. You can host a gathering at your house, at the parc, during coffee or lunch at your work, over dinner, at a clubhouse, the library or maybe even a restaurant.

What is in the AE Awareness tool box?

A presentation including the  AEA movie

Stacks of AE Awareness cards

AE Alliance brochures

If you would like to host a gathering, simply fill out the registration form. If you have any questions or need help organizing your event please contact us.