In a sign of the rising awareness of autoimmune encephalitis (AE), several encephalitis focused groups are expanding their work to include AE.
Next week, Leslie and I are heading to New York to meet with members of the larger Encephalitis community. The Encephalitis Society, a UK based group, has called multiple groups together to discuss how we can work together to collaborate and improve patient / family support. I’m really looking forward meeting with our UK and US based partners.
Encephalitis Global is one of the groups that will be there and they have a useful page about autoimmune encephalitis. This page was brought to our attention by Martha M., a patient who connected with us through the AE Alliance website. We also look forward to getting the latest resources that you are finding useful. Connect with us or share your story about AE.