Clinical Care

Over the last decade, important advances have improved our understanding of the diagnosis, treatment, and underlying causes of autoimmune encephalitis (AE). The number of new publications has increased dramatically in the past few years. A search for scientific articles about AE on PubMed illustrates the growth in AE research. 

From 2000 to 2011 (eleven years), 192 papers were published about AE.

From 2012 to Mid-2013 (18 months), 155 papers were published. The chart to the right shows the number of published papers about “autoimmune encephalitis” by year.

For 2013, 40 papers have been published through July 13, 2013. The red bar indicates the projected number of published papers through the end of the year. 

UPDATE: See recent AE Alliance blog post with updated literature review.

New tests are being developed to identify the causes of AE. And new clinical studies are helping to guide treatment options. However, a large gap exists between the latest science and the clinical care patients receive. Too often basic research fails to cross over into improved clinical care. This gap exists in part because the medical community is at the early stages of understanding this illness.

The Autoimmune Encephalitis Alliance is committed to bridging the gap between knowledge and clinical care. We seek to be a leader in the dissemination, translation, and creation of knowledge about autoimmune encephalitis so that all patients receive a proper diagnosis and effective treatment as early in the disease as possible.

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