Category: News and Events

Your gift is worth double thanks to match by Bob and Suzi Given

Suzi and Bob Given have contributed $25,000 to establish a matching campaign for the Autoimmune Encephalitis Alliance. This means donations we receive will be matched 1:1 up to $25K, by the Given’s gift. Bob is recovering from autoimmune encephalitis and states, “I directly benefited from the work being done by AEA, as have so many others. This donation …

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Giving Tuesday and Amazon Smile

Giving Tuesday and Amazon Smile are two ways to support those suffering from AE. The first Tuesday in December has become a world-wide call for people to celebrate the art of giving; a joining of communities to “give rather than receive.”  Please visit donate to AE Alliance to support those in need and share your giving …

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Autoimmune Encephalitis Alliance represented at “Brain on Fire” movie premiere

The movie adaptation of Susannah Cahalan’s New York Times best-selling book, Brain of Fire, premiered at the Toronto International Film Festival on Friday, September 16. The red-carpet event included pre- and post-movie talks by Charlize Theron, who produced the movie, director Gerard Barrett, Chloe Grace Moretz, who plays Susannah, Dr. Najjar, who diagnosed the disease, and Susannah’s husband, Stephen …

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AEA board member, Susannah Cahalan’s “Brain on Fire” to be shown at Toronto International Film Festival

One morning, 24-year-old Susannah Cahalan woke up in a hospital bed. She couldn’t speak. She couldn’t move. And she had no idea how she got there. The following is from the Toronto International Film Festival website. Based on Cahalan’s bestselling memoir Brain on Fire: My Month of Madness, director Gerard Barrett’s adaptation captures the horrifying …

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Autoimmune Encephalitis Alliance Hires Executive Director

(Durham, N.C.)—The Autoimmune Encephalitis Alliance, a 501(c)(3) non-profit organization, is pleased to announce John “Spencer” Spencer as its new executive director. “On behalf of the Board of Directors of the Autoimmune Encephalitis Alliance, I welcome Spencer as executive director,” said Board Chair Will McDow. “Spencer is already hard at work, moving the Alliance forward in …

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Brazilian scientists find new Zika-linked brain disorder in adults

The following article was published by Rueters on April 11, 2016. “The new discovery now shows Zika may provoke an immune attack on the central nervous system as well.” Brazilian scientists have found a that there is a link between Zika and an autoimmune syndrome called acute disseminated encephalomyelitis, that attacks the brain and spinal cord. Zika, a mosquito-borne …

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AEA board member Susannah Cahalan gives keynote address in Florence, Italy

Susannah Cahalan, journalist and author of The New York Times best-selling book Brain on Fire, and board of directors’ member of the Autoimmune Encephalitis Alliance, gave the keynote address at the Fifth Schizophrenia International Research Society conference in Florence, Italy (the podcast link is below). She shared her story of being struck down, and recovering …

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Autoimmune Encephalitis Alliance part of “Brain Awareness [email protected] Duke”

  The Autoimmune Encephalitis Alliance is participating in the 8th annual “Brain Awareness Week at Duke.” AEA will be tabling on Sunday, April 3, from 1 p.m. – 4 p.m. at the first ever Duke Institute for Brain Sciences (a.k.a.”DIBS)” Discovery Day. Join us in their new 10,000+ square-foot space for laboratory demonstrations, to learn how music can improve quality …

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