Category: News and Events

Music, memory, and neurorehabilitation

For many AE patients and family members, time seems to stand still during the long hours spent in the hospital, infusion centers, traveling, or even at home while recovering. This might be eased by the simple pleasure of listening to music. While classical or jazz may be pleasant to one patient, it might not be for …

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Happy 5th birthday to Autoimmune Encephalitis Alliance

The AE Alliance turned five years old yesterday!  Five years ago on Dec. 17, two families that had kids with AE came together in hopes that they could start something to help others suffering from this little-understood disease.  The vision was to not only disseminate information to help patients but also to give support to …

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Make a difference in the lives of children and adults with autoimmune encephalitis today – #GivingTuesday and Amazon Smile

Make a difference in the lives of children and adults who are suffering from this rare form of brain inflammation. #GivingTuesday is today! Black Friday and Cyber Monday have passed so now please take the time to give to others in need. Your gift to the Autoimmune Encephalitis Alliance is used to help patients find …

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“Giving Tuesday” celebrated around the world on November 28

Giving Tuesday, celebrated on the Tuesday following Thanksgiving (in the US), is a global giving movement in it’s sixth year. In response to  shopping events Black Friday and Cyber Monday, #GivingTuesday kicks off the charitable season, when many focus on their holiday and end-of-year giving. We are always so touched at AEA by the generous spirit …

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Long-term neurobehavioral outcomes in Autoimmune Encephalitis

One of the first studies on long-term neurobehavioral outcomes in patients affected by AE will be presented by Anusha Yeshokumar, MD, during the upcoming Encephalitis Society meeting in London. This may be difficult news for some AE patients, however at times it is comforting to know that what one suffers is not unusual. The study found that …

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Dr. Josep Dalmau Receives Prestigious Award for Research in Autoimmune Brain Disease

Pioneer in the field of autoimmune encephalitis, Josep Dalmau was recently honored with the prestigious Rey Jaime I Award for medical research in a ceremony in Barcelona, Spain. His group’s achievements are in the area of autoimmune disorders that affect the brain, including the recognition of several new syndromes in autoimmune encephalitis. They are credited …

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University of Indianapolis hosts soccer event honoring autoimmune encephalitis survivor

Rory Halbert was recognized at a University of Indianapolis women’s soccer game recently as part of TeamIMPACT, a program which allows children with serious illnesses to become an honorary member of a college team. Rory was recognized at halftime, as she is graduating from the program. The team wore green to show support for Rory’s …

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Neurology conference includes special meeting on autoimmune neurology

Well-known pioneer in the field of autoimmune encephalitis, Josep Dalmau, reported that interest in the emerging field of autoimmune neurology has increased enough to warrant its first focused section meeting at the annual American Academy of Neurology conference this year. He stated that ongoing studies are providing new information on the pathologic mechanisms of action …

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Blood-brain barrier studies may lead to breakthrough in AE

We are encouraged that researchers at Columbia University Medical Center in NY, NY recently published a review article, bringing together many facets of research on how antibodies and other types of immune cells are able to cross the blood-brain barrier and gain access to the brain, causing autoimmune encephalitis. They stated that these routes of …

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Spanish language translation of earlier Sept. 13, post –HLN, CNN y NY Post producen historias sobre tres damas con encefalitis autoinmune

Tenga en cuenta: usamos Google translate para la traducción de este blog, originalmente en el sitio web de la Alianza de Encefalitis Autoinmune. Nos disculpamos si hay algún error. Los espectadores de todo el país vieron el domingo, 27 de agosto, cuando tres damas (sobrevivientes) y sus familias compartieron historias de sus tumultuosas experiencias con …

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