Category: News

AEA board member, Susannah Cahalan’s “Brain on Fire” to be shown at Toronto International Film Festival

One morning, 24-year-old Susannah Cahalan woke up in a hospital bed. She couldn’t speak. She couldn’t move. And she had no idea how she got there. The following is from the Toronto International Film Festival website. Based on Cahalan’s bestselling memoir Brain on Fire: My Month of Madness, director Gerard Barrett’s adaptation captures the horrifying …

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Breakthrough for CF provides hope for all patients

A recent article in Scientific American about a revolutionary drug for Cystic Fibrosis (CF) patients should provide hope for everyone facing rare diseases.  The article describes in great clarity the obstacles to creating a groundbreaking new drug.  And the enormous costs – often measured in the billions of dollars.  Yes, billions with a B! “Ultimately the …

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Valentine’s Day

Most of our attention over the past 6 – 8 weeks have been directed towards the Florence Forth road race.  Today we wanted to offer a trip down memory lane from Valentines Day 2012. Happy Valentines Day Two years ago, Leslie and Florence’s Pops combined to write this blog post. This was Florence’s last big …

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It’s Our 1st Anniversary

Today, December 17th, is the one year anniversary of the Autoimmune Encephalitis Alliance becoming a non-profit organization. 2013 was a wonderful year with many great events, including Florence Forth, Across the Starting Line, educational Grand Rounds and book readings and many amazing connections with families, patients and doctors. We look forward to working with all of …

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