Category: News and Events

Lily’s Journey Back

Greetings AE Family & Friends, We are excited to unveil a beautiful new card series, Lily’s Journey Back, for purchase in support of the Autoimmune Encephalitis Alliance. Sixteen-year-old Lily Westerkamm, for whom the card set is named, was only fourteen when she was diagnosed with AE. During her treatment at Riley Hospital for Children at IU …

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Thank you

Today is Thanksgiving, a holiday for the family to come together and give thanks. This year will be different as not all families will be able to reunite for the holidays due to COVID-19. This situation may apply to our AE community even more so, as many of you are on immunotherapy or just finishing …

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Vitamin D

Vitamin D (cholecalciferol) is a nutrient found in some foods like fatty fish that can be added to your diet as a supplement. Our body makes vitamin D when our skin is directly exposed to the sun, and most people meet at least some of their vitamin D needs this way. Vitamin D is required …

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Medicine Assistance Tool

The AE community is all too familiar with insurance companies denying coverage for treatments and the cumbersome appeals process they must undergo to get that much-needed treatment. These denials and appeals take up a lot of time & energy and produce frustration and uncertainty. These complications come on top of fighting the disease itself and …

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