Category: News and Events

Ask the Panel

AE Alliance receives questions on a daily basis from patients and caregivers on diagnosis, treatment, recovery, and research. Sometimes these questions are very specific, but often they will apply to a lot of patients and caregivers. Starting in October, we will have a new segment in our newsletter: Ask the Panel. Your question will be …

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Comparing autoantibody-negative and autoantibody-positive Autoimmune Encephalitis patients

Early diagnosis of AE allows for aggressive treatment, which greatly improves recovery outcomes. On the contrary, delayed diagnosis and treatment can lead to permanent brain injury or even loss of life. In literature, no work has been published which compares clinical, radiological and laboratory characteristics of patients with definite autoantibody-positive AE (AE+) and autoantibody-negative AE (AE-). …

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Texas Children’s Hospital sponsors “AE Family Day of Hope: Navigating Autoimmune Encephalitis”

Texas Children’s Hospital’s “Annual Day of Hope” was well attended and a great success! Around 100 patients, family members, faculty and staff attended this event, lead by Eyal Muscal, MD, pediatric rheumatologist at TCH. Families mingled over lunch, children enjoyed creative activities and a talk was given by Dr. Muscal on the current status of …

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Fighter

I am a survivor, sometimes I feel weak but after all I have been through, I know I am stronger than I think I am. When I feel pity for myself I remember that there are people who have gone through worse situations than me. When you cannot change or control the situation, you must …

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