Category: Patient Support

World Encephalitis Day 2/22

World Encephalitis Day (“WED”) is celebrated every February 22 – just remember 222.  While we at the Autoimmune Encephalitis Alliance focus on autoimmune encephalitis, we are so happy to join in supporting all of those affecting by any form of encephalitis. To show your support for those with encephalitis of all types, wear the color red …

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AEA board member, Susannah Cahalan’s “Brain on Fire” to be shown at Toronto International Film Festival

One morning, 24-year-old Susannah Cahalan woke up in a hospital bed. She couldn’t speak. She couldn’t move. And she had no idea how she got there. The following is from the Toronto International Film Festival website. Based on Cahalan’s bestselling memoir Brain on Fire: My Month of Madness, director Gerard Barrett’s adaptation captures the horrifying …

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One is Too Many

When I talk about autoimmune encephalitis, I often get the question “How many people have autoimmune encephalitis?” My answer, “We don’t know.” The first few times I was asked these questions, I was apologetic for not having an answer.  I would answer, “This disease is so new the doctors haven’t yet compiled the statistics.” Or …

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