Category: Patient Support

#AskMeAboutAE

This Rare Disease Day, and in honor of Brain Awareness Month, HESA and AE Alliance have come together, to kick off our #AskMeAboutAE campaign, visualizing the consequences of autoimmune encephalitis. No one understands the daily struggles like you and your caregivers. You experience the consequences of AE every day. It is important to talk about …

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Holistic Healthcare

We have had the pleasure of having Dr. Joe Lindley speak at our South Support Group meeting in January. Dr. Lindley is a holistic health practitioner who has been in practice for over 40 years. He is a chiropractor, acupuncturist, and applied kinesiologist who utilizes homeopathy, therapeutic nutrition, and mind-body balancing techniques with his patients. …

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New Year, New Look!

Our online AE Smart Patients Community has undergone a make-over, making it even easier to search by topic and connect. You can join the community for free to share, interact, and learn from others affected by autoimmune encephalitis in a safe, supportive environment. We started working with Smart Patients in September 2018 to provide our …

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Lily’s Journey Back

Greetings AE Family & Friends, We are excited to unveil a beautiful new card series, Lily’s Journey Back, for purchase in support of the Autoimmune Encephalitis Alliance. Sixteen-year-old Lily Westerkamm, for whom the card set is named, was only fourteen when she was diagnosed with AE. During her treatment at Riley Hospital for Children at IU …

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