Category: Life with AE

NORD Launches New Program Aimed at Providing Caregivers with Relief

NORD has launched the Rare Caregiver Respite Program, a first-of-its-kind program aimed at providing caregivers of rare disease patients a much-needed respite.  Caring for a loved one with a rare disease demands significant time, attention, patience and dedication. NORD’s Rare Caregiver Respite Program is designed to give back to caregivers—the parent, spouse, family member, or …

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Charity’s journey with Autoimmune Encephalitis

On #RareDiseaseDay Charity shares her journey with Autoimmune Encephalitis: March 2018 was like every other year, I was preparing to do my spring cleaning. My husband Patrick and I, had our birthday celebrations and all our visitors had left to go home. I woke up and thought that it was a great day to start cleaning so I got out my cleaning supply bucket and cleaning supplies, recruited …

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