Category: Life with AE

Lily’s Journey Back

Greetings AE Family & Friends, We are excited to unveil a beautiful new card series, Lily’s Journey Back, for purchase in support of the Autoimmune Encephalitis Alliance. Sixteen-year-old Lily Westerkamm, for whom the card set is named, was only fourteen when she was diagnosed with AE. During her treatment at Riley Hospital for Children at IU …

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Giving Tuesday is Now!

The 2020 year has been unprecedented in so many ways. Though this pandemic has wreaked havoc in all our lives, our AE community has experienced the disruptions in profound and tangible ways, from interruptions in treatment to implementing particularly stringent measures to protect fragile immune systems. In partnering with you through your journey with AE …

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Thank you

Today is Thanksgiving, a holiday for the family to come together and give thanks. This year will be different as not all families will be able to reunite for the holidays due to COVID-19. This situation may apply to our AE community even more so, as many of you are on immunotherapy or just finishing …

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We are sending virtual hugs!

November is National Family Caregivers Month, which recognizes and supports all the work caregivers do to support their loved ones with autoimmune encephalitis. There are over 53 million Americans who are unpaid caregivers to family, friends, and neighbors. Caregiving often has a significant impact on the life of the caregiver. It can make maintaining your …

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