Category: Life with AE

We Appreciate You!

With Thanksgiving upon us in the US and the holiday season approaching, here at the Autoimmune Encephalitis Alliance we want to take a few minutes to express our heartfelt gratitude to the many people who make fighting this rare illness possible: Thank you to the people affected by AE and their families and friends, who …

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Rebecca’s Mom

I remember thinking when this year began that things were finally coming together for the Scheinert girls, who have had no shortage of ups and downs. My mom, two sisters, and I have been through it all together. I was diagnosed with Juvenile Rheumatoid Arthritis before I could walk, and a variety of other autoimmune …

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Texas Children’s Hospital sponsors “AE Family Day of Hope: Navigating Autoimmune Encephalitis”

Texas Children’s Hospital’s “Annual Day of Hope” was well attended and a great success! Around 100 patients, family members, faculty and staff attended this event, lead by Eyal Muscal, MD, pediatric rheumatologist at TCH. Families mingled over lunch, children enjoyed creative activities and a talk was given by Dr. Muscal on the current status of …

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