Category: For Providers

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Paper released on diagnosis and treatment

Two physicians from the Mayo Clinic have just published a paper for clinicians discussing the diagnostic testing available for the many autoimmune neurological illnesses including AE and its various forms. They also included treatment approaches used by their institution and many others. A few highlights include: These disorders often develop rather quickly and produce many …

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Persistent symptoms reported in children and adolescents after anti-NMDA receptor encephalitis

A recent article in Neurology Now, a publication of the American Association of Neurology for laypeople, notes many children and adolescents are continuing to experience cognitive problems, fatigue and behavioral problems even after recovery from anti-NMDA receptor AE. They observed these issues are affecting academic performance and quality of life in a Dutch study of …

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Evaluation and Management of AE: A Clinical Overview for the Practicing Child Psychiatrist

The importance of awareness of AE among child psychiatrists has been emphasized in a recent publication by Mooneyham, Gallentine and VanMater of the Duke University Children’s Hospital Autoimmune Brain Disease Program. They note that the nature of early symptoms may lead children to be evaluated first by a psychiatrist. These may include the acute or …

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Diagnosis of AE on clinical basis confirmed by pediatric study

Experts in the field of AE came together in 2016 to establish a set of clinical diagnostic criteria to be used early in the course of disease (Graus et al). This was developed so that patients might be diagnosed with suspected AE and treated promptly, while still awaiting test results or in areas where antibody …

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Targeted Therapy Holds Future Promise

In many areas of medicine, treatments are increasingly becoming targeted in a way that benefits patients. This is happening in fields ranging from oncology to neurological disease. In this month’s Neurology Now, treatment for autoimmune encephalitis is being cited as one area where “precision medicine” holds promise for better and targeted treatments according to antibody …

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New treatment for anti-NMDAR autoimmune encephalitis reports Charité – Universitätsmedizin Berlin

One of the one of the largest university hospitals in Europe, Charite’, recorded significant progress in treating anti-NMDAR, including in patients who did not previously respond to treatment. Anti-NMDA receptor encephalitis is an inflammatory disease that affects the central nervous system. It is a rare autoimmune disease that results in the body producing antibodies against …

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Autoimmune Encephalitis Alliance and Option Care co-sponsoring Mayo Clinic Trial on IVIg

The Autoimmune Encephalitis Alliance and Option Care Enterprises, Inc. are co-sponsoring a clinical trial at Mayo Clinic to evaluate intravenous immunoglobulin (IVIG) treatment in patients with autoimmune epilepsy who fail to benefit from standard epilepsy medications. This study, the first of its kind, builds on Mayo Clinic research advances identifying new approaches to the diagnosis and treatment …

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New pediatric center in Arizona targets autoimmune disorders

The following was reported by Stephanie Innes at the Arizona Daily Star. The opening of the new Children’s Postinfectious Autoimmune Encephalopathy Center in Tucson marks a new era of pediatric research for the University of Arizona, UA president Ann Weaver Hart said Tuesday during an opening event held at Banner-University Medical Center Tucson. The disorders hit …

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Disseminating Knowledge

One core mission of the Autoimmune Encephalitis Alliance is to share the latest research to improve the clinical diagnosis and treatment of AE.  A list of symptoms and a brief discussion of diagnosis are provided in the Living with AE section of this website. In January 2013, the AE Alliance coordinated a Grand Rounds at Duke University Medical Center. Our board members …

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