Author: Will McDow

International Experts Gathering in Durham, NC to Discuss Cure for Rare Disease

First Annual International Autoimmune Encephalitis Symposium, March 27-28, 2014 On March 27th, doctors and scientists from across the US and the world will gather for a two day AE Symposium, the goal of which is to improve the diagnosis, treatment and care for children and adults with autoimmune encephalitis (AE) and advance research towards a …

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Valentine’s Day

Most of our attention over the past 6 – 8 weeks have been directed towards the Florence Forth road race.  Today we wanted to offer a trip down memory lane from Valentines Day 2012. Happy Valentines Day Two years ago, Leslie and Florence’s Pops combined to write this blog post. This was Florence’s last big …

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It’s Our 1st Anniversary

Today, December 17th, is the one year anniversary of the Autoimmune Encephalitis Alliance becoming a non-profit organization. 2013 was a wonderful year with many great events, including Florence Forth, Across the Starting Line, educational Grand Rounds and book readings and many amazing connections with families, patients and doctors. We look forward to working with all of …

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Encephalitis groups focusing on AE

In a sign of the rising awareness of autoimmune encephalitis (AE), several encephalitis focused groups are expanding their work to include AE. Next week, Leslie and I are heading to New York to meet with members of the larger Encephalitis community.  The Encephalitis Society, a UK based group, has called multiple groups together to discuss how …

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One is Too Many

When I talk about autoimmune encephalitis, I often get the question “How many people have autoimmune encephalitis?” My answer, “We don’t know.” The first few times I was asked these questions, I was apologetic for not having an answer.  I would answer, “This disease is so new the doctors haven’t yet compiled the statistics.” Or …

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Disseminating Knowledge

One core mission of the Autoimmune Encephalitis Alliance is to share the latest research to improve the clinical diagnosis and treatment of AE.  A list of symptoms and a brief discussion of diagnosis are provided in the Living with AE section of this website. In January 2013, the AE Alliance coordinated a Grand Rounds at Duke University Medical Center. Our board members …

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