Author: Kimberley de Haseth

You are not alone

To our AE Alliance family and friends, In these unsettling days requiring extraordinary measures to safeguard against COVID-19, we, at the AE Alliance, are more concerned than ever for your wellbeing.  From its outset, there has been uncertainty, confusion, and anxiety about this virus.  Disruptions to our daily lives are unprecedented and information is rapidly …

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Ask me about AE

Today is Rare Disease Day and the kick-off of our ‘Ask me about AE’ campaign. Each year, Rare Disease Day takes place on the last day of February. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Like …

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#Red4Wed

One more week until World Encephalitis Day. Let’s all raise awareness for Autoimmune Encephalitis because far too often people with AE still go undiagnosed or misdiagnosed. World Encephalitis Day, founded by the Encephalitis Society in the UK, is the global awareness day for people who have been directly or indirectly affected by encephalitis. This day …

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Clinical approach to the diagnosis of autoimmune encephalitis in the pediatric patient

Autoimmune encephalitis (AE) is an important and treatable cause of acute encephalitis. Diagnosis of AE in a developing child is challenging because of overlap in clinical presentations with other diseases and the complexity of normal behavior changes. Existing diagnostic criteria for adult AE require modification to be applied to children, who differ from adults in …

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Jim’s AE Journey

While living in Idaho Falls Idaho in October 2011 my husband, 44-year-old Navy Gulf War Veteran (1987-1992), started having occasional dizziness. January 2012 he started having multiple daily “episodes” lasting a couple of minutes… distorted vision, traveling goosebumps from right temple down right side of body jumping to left leg and traveling up left side …

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