AE Alliance seeks an Executive Director

The Board of Directors of the AE Alliance seeks an Executive Director to lead its global efforts in educating physicians, supporting patients, families, and caregivers, and advocating for a cure to autoimmune encephalitis.


Reporting to the Board of Directors, the Executive Director of AE Alliance strategically leads the organization and its staff in executing all aspects of its mission. Chief among all responsibilities is building relationships and inspiring investments in AE Alliance.

The Executive Director will be called upon to fulfill the following key responsibilities:

  • Leadership:  Serve as the primary advocate, visionary, fundraiser, and spokesperson for the global organization.  The leader will work with the board in refining the vision and strategic plan that charts a course for AE Alliance’s future and then articulates that vision to internal and external stakeholders in a way that inspires investment.  The Executive Director will be responsible for developing strategic relationships with physicians, researchers, families, patients, partner organizations, donors, and prospective donors with a constant focus on expanding the reach of the Alliance.
  • Resource Development:Ensure short and long-term fundraising plans are developed and executed with a focus on major gift (five figure plus) fundraising from individuals, foundations, and corporations. This requires expanding the breadth and depth of relationships and true collaborative partnerships that will lead to sustainable funding streams and significant philanthropic investments in AE Alliance’s future.  The Executive Director leads resource development efforts, strategically engaging the Board, members of the Medical Advisory Board and other Alliance advocates in the fundraising process.
  • Board Governance: In collaboration with the Board, identify, recruit, train, and retain highly effective board members. Maintain regular communications with the Board of Directors and provide them with the necessary support, counsel, and information required for effective governance. Ensure a quality process for supporting the board and their involvement in fundraising, strategic planning, program delivery, and increasing overall visibility.
  • Communications:  Build the Alliance brand to expand the organization’s reach and to leverage financial, programmatic, and fundraising opportunities available to the organization.  Oversee all communications including newsletters, impact reports, the website, social media, and other general communications.
  • Financial Oversight: Oversee the financial integrity of AE Alliance, ensuring the strategic creation and adherence to the budget, diligently following approved financial policies, and accounting ethics and best practice.
  • Management and Supervision: Oversee the hiring, training, supervision, evaluation, and dismissal of Alliance staff. Ensure staff members work effectively toward shared goals and a unified vision for the organization. Build a positive work culture that supports a productive, professional work environment.



The new leader must demonstrate a firm commitment to and passion for the AE Alliance mission.  In addition, he or sheshould possess a variety of attributes, including:

  • Inspiring, visionary leadership that motivates the Board, staff, families, patients, physicians, researchers, donors, volunteers, and partners.
  • Strategic relationship builder and major gift fundraiser.
  • Ability to empathize with families in medical crisis, while preserving his or her own emotional health and setting appropriate personal boundaries.
  • High social and emotional intelligence.
  • Integrity and sound judgment.
  • An entrepreneurial spirit and creative, growth mindset.
  • Comfortable with technical and medical information with an ability to translate for the lay person. 



  • Five or more years in a leadership position or commensurate experience with demonstrated success in organizational management including fundraising, strategic planning, innovation and program development.
  • A proven track record in building and maintaining relationships across a wide spectrum of personalities and professions with a strategic focus on fostering investment of financial resources and expertise.
  • Demonstrated success securing major gifts (five figures plus) from individuals, foundations, and/or corporations.
  • Experience helping a board transition from a start-up, working board to a governing board.
  • The ability to inspire others through written and verbal communications.
  • Grant writing experience.
  • Strong business acumen, solid understanding of finance and budgeting.
  • Medical advocacy, understanding of healthcare systems, or similar experience preferred.
  • Willingness to travel domestically about 25% of the time and internationally once or twice per year.
  • A bachelor’s degree or higher from an accredited college/university.

Salary offered for this position is $75k-$85k and benefits include employee health insurance, retirement match, and personal time off.

Although the organization is headquartered in Durham, NC, a remote location will be considered for highly qualified candidates.



Armstrong McGuire & Associates, based in Raleigh, NC, is conducting this search in partnership with Autoimmune Encephalitis Alliance Board of Directors. To apply, click on the link to AE Alliance position profile at You will see instructions for uploading your cover letter, resume, and professional references.  In case of any technical problems, contact [email protected]. No phone calls please, and no applications will be accepted by email or through third-party sites.