Will McDow, Chairman
Will McDow brings 15 years of nonprofit expertise to the founding of the Autoimmune Encephalitis Alliance. He has spent the past 10 years at Environmental Defense Fund developing policy and market solutions to solve national environmental issues. Will grew up in South Carolina, attended college in Wisconsin and now lives in Durham, NC with wife Leslie and daughter Laura Mishler. Will is an avid runner and occasional backpacker.
Daniel Egger, Treasurer
Daniel Egger is currently Executive in Residence at Pratt School of Engineering at Duke University. After a twenty-year career in venture backed technology companies, Daniel began teaching data science courses in the Duke Master of Engineering Management Program, in 2009. Daniel has helped to organize Duke’s new Master of Interdisciplinary Data Science Degree Program, which has its first class in Fall 2018. He is also committed to online education: his data science courses on Coursera have been taken by over 400,000 students around the world. Along with his family, Daniel has written extensively about his experience with his son Sasha’s autoimmune encephalitis.
Leslie McDow, Secretary
Leslie McDow is currently the Associate Director of Employer Relations at UNC Kenan-Flagler Business School. She brings over 20 years’ experience in banking, finance, marketing and sales. She also has deep wisdom with patient advocacy as her and Will’s daughter, Florence, suffered from Autoimmune Encephalitis (AE) during a time when AE was not well researched or known. Leslie earned her BA from Davidson College and her MBA in Finance and Marketing from University of Tennessee College of Business. She lives in Durham, NC with her husband Will and daughter Laura.
Barbara brings over 20 years of sales, marketing and event planning experience to the Alliance. She holds an undergraduate degree in marketing from Cornell University and a MBA in finance and marketing and a MS in organizational communication from Boston University. Barbara works as a realtor with Residential Properties, Ltd. in Rhode Island and has a special interest in residential construction projects.
Carrie is currently a Finance Director at Duke Corporate Education. Her 20+ year career has included consulting and operations roles in the professional services & academic fields. She brings both for-profit as well as not-for-profit experience to the AEA board. Carrie has coordinated the Family Luncheon for families following the Florence Forth race since its inception and is passionate about the work the AEA is doing to connect families battling this disease. Carrie earned her BS for UMass Lowell in Exercise Physiology, an MA from Framingham State College and her MBA from Duke University. She lives in Durham, NC with her husband Rusty and her lively son Ben.
Susannah Cahalan – Ex Officio Member
Susannah Cahalan is an award-winning journalist and author of the #1 New York Times bestseller “Brain on Fire” about her struggle with autoimmune encephalitis in 2009. Her work has appeared in the New York Post, New York Times, Scientific American magazine, and other publications. She frequently speaks at universities and hospitals about her experience with autoimmune encephalitis. Susannah lives in Brooklyn, NY with her husband and dog. For more information, visit her website.
Robert Given, CPA
Robert (Bob) Given a native of Los Angeles heads the public accounting firm of Given & Company located in Santa Monica, California. A 1966 graduate of Menlo School of Business, Bob’s varied career includes work as a CFO, an auditor for a international CPA firm, a business founder and a community board member / volunteer. In 1975 Bob started Given & Company, a full service public accounting firm.
Married to his wife Suzi, they have two sons and 4 grandchildren. Bob and Suzi continue to be active in various community activities. In May 2016 Bob, age 71, suffered three grand mal seizures. He was fortunate enough to have his neurological condition (Autoimmune viral encephalitis – Caspr2) quickly diagnosed by the Mayo Clinic, Rochester, MN. Since that date Bob has been on a rigid drug program and has regained many of his former abilities. He is a survivor.